BDSRA is the largest support and research organization dedicated to Batten disease in North America. Founded in 1987, it is committed to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. BDSRA believes in the collaboration between medical science, research, and families to unravel the mysteries of Batten disease and improve the quality of life for those affected by the disease.
With a mission to discover treatments and cures for Batten disease, BDSRA works towards a common goal by bringing together the worlds of medical science, research, and families. Through funding research, providing support services, and advocating for legislative action, BDSRA aims to improve the lives of individuals living with Batten disease and raise awareness about this rare condition.
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