Beyond Batten Disease Foundation, based in Austin, TX, is a non-profit organization dedicated to finding a cure for Batten disease and other rare genetic diseases that affect children. Through their research activities and collaborations with scientific resources, academia, and the pharmaceutical industry, they strive to drive progress towards treatments and cures for these devastating conditions.
Founded by Charlotte and Craig Benson in 2008, the foundation has invested $35 million in research and has been cited 9100 times for their funded research. With a focus on advancing treatment options and raising awareness, Beyond Batten Disease Foundation is committed to providing hope and support to families affected by Batten disease.
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