The Superficial Siderosis Research Alliance, Inc is a non-profit organization based in Pewaukee, WI that is dedicated to raising awareness and funding for research on superficial siderosis, a rare neurological disorder that affects the brain and spinal cord. Through education, advocacy, and outreach, they aim to support individuals affected by this condition and empower the medical community to better understand and treat superficial siderosis.
The organization provides resources for patients, medical professionals, and researchers, including brochures, disability guidelines, medical alert cards, and a patient registry. They also fund research initiatives and collaborate with top-tier researchers to advance the understanding of superficial siderosis. With a strong emphasis on community and support, the Superficial Siderosis Research Alliance strives to make a difference in the lives of those living with this challenging condition.
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